If you have had ostomy surgery, or you are caring for someone with an ostomy, this website is intended for you.
When you first have ostomy surgery, it can feel as though your world has turned upside down. There is so much to learn and so many emotions running through your mind. You may feel as though you will never figure out how to do the things you need to do and that you may never lead a normal life again.
Most hospital stays are short and it is so difficult to grasp all of the hospital instructions while your mind is still hazy from anesthesia and medication. What teaching has been done is hard to remember when you are suddenly on your own.
You are not alone in your thoughts and feelings!
This not-for-profit organization was formed from just such a need, by a patient who found himself coming home from the hospital after urostomy surgery, unsure of what to do as pouching problems occurred. After much searching, and many leaking pouches, he found scattered information here and there and eventually got the help he needed. This website is intended to provide accurate information and education in various forms, as well as resources to ease your adaptation to your new way of life.
Ostomy care teaching is best with a trained ostomy nurse; however there are not enough of them, nor enough hospitals and home care agencies with specialized ostomy training. These are few and far between. It can be very hard to find the help you need, so we created this site to aid both patients and caregivers, including medical professionals.
We have attempted to provide a very comprehensive website with video demonstrations of pouch change procedures and other care needs, written information and instructions, as well as a telephone Help Line where you may call to ask questions. We will continue to add new information and make this site as inclusive and up-to-date as possible, so you will have everything you need at your fingertips
We are even going a step further. The Miami Ostomy Aftercare Program has contracted with the Wound Ostomy and Continence Nurses Society to provide education and hands-on training for nursing professionals to improve skills in ostomy care. It is our hope that they will, in turn, fill the need for more hospitals and home care agencies to have staff that can truly provide ostomy care education for patients.
In addition, you will find information about our ostomy support group, affiliated with the United Ostomy Associations of America. Groups such as this help you to meet others who are going through similar situations. Informative speakers are a part of each meeting as well as time to ask questions and share with others.
The transition from the surgery and hospital stay, to discharge home, and on to healing requires managing life changing processes that progress to leading an active productive life. This process takes time. The reason for surgery and the procedure may be different, but the result is that things have changed and learning how to care for an ostomy is a priority. Much of it relies on your attitude and the aftercare that you receive. It can be overwhelming, but Miami Ostomy Aftercare is here to help you. Use this website to find videos and written information to show you the steps for changing an ostomy pouch, and information that you can use every day as you get used to new methods and habits. There is much to learn and so much to feel. Let us help!
Itís all about Aftercare!!
Written by: Harold W. Spaet, President & Treaurer
Edited by: Mary Lou Boyer, BS Ed, RN, WOC Nurse, MOA Educational Coordinator